Pain In The Spotlight

Sir Liam Donaldson

Chief Medical Officer Sir Liam Donaldson, in his Annual Report to Parliament, has drawn attention to the extent to which long-lasting pain blights the daily lives of millions of people.  He has underlined the need to increase education and training in relation to chronic pain amongst health professionals and also given attention to the desire to improve the Health Service’s present treatment provision.

Although the media in the UK seems to have largely ignored this significant part of Sir Liam’s report – focusing instead upon alcohol consumption, obesity and knife crime – the report does figure as a significant advance in the slow but sure movement towards improving the treatment of pain.

Neuropathy Trust Survey

It is worth looking back a few years to the very comprehensive survey that over 600 of our regular readers contributed to, and which we displayed at the Pain Society’s annual meeting that same year.

Neuropathy Trust Survey 2004

(Dr C K Booker & A Keen)

CMO’s Report – 2009

1

There would appear to be a need both for GP education and for fast-track referral and investigation practices.”

Training in chronic pain should be included in the curricula of all healthcare professionals…”  The feasibility of a national network of rapid access pain clinics providing early assessment and treatment should be explored.”

2

Dissatisfaction with the management of PN and pain was the norm and this was associated with diagnostic delay.”

Chronic pain and its consequences are not as well controlled as they should be.  Early intervention may stop pain becoming persistent.”

Those of our readers who took the time to complete our innovative survey might draw some satisfaction from realising that they have contributed, at an early stage, to the now growing calls for changes in the recognition and treatment of pain.  Many other problems which surround people affected by chronic pain, all too familiar with many of our readers, are also highlighted in the report.  Just some of the report’s key points are shown here.

  • Each year over 5 million people in the United Kingdom develop chronic pain, but only two-thirds will recover.  Much more needs to be done to improve outcomes for patients.

  • Chronic pain has a major impact on people’s lives, causing sleeplessness and depression and interfering with normal physical and social functioning.

  • All age groups are affected: a quarter of school-age children reported pain (on average lasting more than three years), while most elderly residents of nursing homes experienced frequent moderate to severe pain.

  • The limited number of specialist pain clinics around the country are inundated with referrals, and only 14% of people with pain have seen a pain specialist.  Systems and infrastructure are not adequate to meet need or demand.

  • Better coordination of services and services designed around the patient’s needs are essential.

Non-Drug Treatments

Over the years various drugs have been tried but still the pain is excruciating – especially when sitting or lying down.  I have this unbearable pain in my feet and toes.  It is becoming more than I can bear, because there is no respite night and day.  I must confess, my thoughts are sometimes suicidal – cowardly maybe – but until some help is found for this condition I have to drug myself through my days and nights.  Little is written on non-pharmaceutical interventions for neuropathic pain.  I live in hope that you can help people like myself.”

(N.T. member – Nora (now sadly deceased)

Although by no means extensive, the report does list some non-drug treatments.

”Transcutaneous electrical nerve stimulator (TENS) machines work in a number of ways.  Simply put, they work by using electrical energy to directly alleviate nerves in the spinal cord.  In the same way in which pain is helped by rubbing a painful body part, this competes with the ‘pain signal’ and blocks it, as explained by the ‘Gate theory’ proposed in the 1960s.  However, more complex mechanisms are likely to exist as well.  Whatever the mechanism, TENS treatment can have a significant effect on many types of pain if used properly, often in conjunction with other treatment options.

Acupuncture may work in a number of ways.  It may have a counter-irritant effect as well as encouraging the release of the body’s own painkillers (endorphins).  Many other rationales have been proposed, and there is much controversy about acupuncture.  However, there is no doubt that some patients report significant benefit for some pain problems.

Maintaining or regaining a degree of physical function is widely accepted as crucial to reducing the effects of pain.  Physical therapy and/or appropriate rehabilitation programmes both treat pain directly and give patients the knowledge and skills to maintain their own health and function.  This may also help to maintain psychological well-being.

Many localities now run physical activity and leisure services or equivalent schemes, some of which are targeted at people with complex pain.  These aim to reintroduce and maintain good physical function and health.  Health trainers can improve patients’ confidence in doing things despite their pain.  This also reduces the risks of heart disease and obesity.

Cognitive behavioural therapy* can help patients to break the cycle of pain, fear, immobility and disuse that leads to ever-worsening pain.  This approach also helps to develop self-management and coping strategies, and to improve social and physical functioning, even where the underlying pain cannot be improved significantly.  The newer, third-wave therapies such as mindfulness and acceptance-based therapies have proved to be very useful…”

*Cognitive behavioural therapy is featured in the Trust’s ‘Quality of Life’ booklet, which was written by Dr Clare Daniel.

Integrated Approach

The report recognises the fact that people affected by chronic pain have to also cope with the various aspects of the impact which it has upon other areas of their lives.  It recommends that “…aspects of care are integrated and joined up, rather than instigated sequentially or in isolation.”  Quite significantly, it also says that “Patients report that being listened to and given choices over treatment are just as important as the therapies themselves.”

A number of practical actions have been recommended including:

  • Training in chronic pain included in the curricula for all healthcare professionals

  • For patients in hospital, a pain score should become part of the vital signs that are monitored routinely

  • The feasibility of a national network of rapid access pain clinics providing early assessment and treatment should be explored.

Conclusion

The report should be welcomed by everyone who has an interest in the proper diagnosis and treatment of pain.  For years there has been a frustration amongst people affected by chronic pain and those people called upon to offer treatment.  Now, thanks to the many individuals who have dedicated a greater part of their lives to research and clinical treatment for pain, and contributions from those affected by it, there is a real chance of tangible improvements.  Sir Liam Donaldson, as Chief Medical Officer, is known for his tenacity of purpose.  Although there is still a long way to go before the suggested improvements arrive in place, it is unlikely now that the present momentum for change will in any way lessen.  Whatever the future difficulties, we truly welcome all of the initiatives proposed in the report.

  • Neuropathy Trust

Comments

6 Responses to “Pain In The Spotlight”
  1. Joanne North says:

    Over the last 9 years the neuropathic pain has been the worst thing I have ever gone through. The pain in my abdomen from where I had my operation. I awoke from the operation with the most excruiating pain ever. I knew this wasn’t a normal pain. Nurses tryed to get me up from my bed, I couldn’t. Drs and nurses just made me feel like I was a liar. I was bullied and felt like I was not believed at all. It took me a year and a half to find a Dr who believed my pain, and all the different symptoms I felt. The burning, the freezing sensations, in my feet. I have balance problems with my legs. Numbless in my feet. In fact there are so many symptoms, I can’t keep up with it any more. I wanted to kill myself at the beginning, but I thought I mustn’t give up for the sake of my husband and my mum.In the end I was diagnosed with neuropathic pain. I am fighting the neuropathy with all my strength.I have many health problems and disabilities and use a walking stick and wheelchair.The drugs that are used for neuropathy I cannot take as I have many allergic reactions to them. I take each day as it comes now. I have to rest as much as I can. I try to do little hobbies each day. If it wasn’t for this trust I don’t where I would be now. So I would like to say a big thankyou to you all, and keeping up the good work to help us all, and to train Doctors in this terrible disabling condition. This has truely effected my life, and my family.

  2. Marcus McGILL says:

    I am a survivor of Variant Blastic Mantle Cell Lymphoma…Treated by monoclonal antibody..mabthera. I have been through chronic GVHD treated by Photophresis….during which I contracted GBS.
    I have ongoing peripheral neuropathy..which is becoming ever more acute. I am prone to constant attacks of shingles ( X3 in the past 6months ). I was diagnosed at the age of 42 and am now 52yys. Male. I have erectile and orgasmic dysfunction. :( …..but married my long term girlfriend who I met when diagnosed :) .
    I do get quite ‘Fed up’ at times. I have a compromised immune system and am unable to work due to ‘employer liability regulations’ re Health and safety.
    Trying to stay positive.

  3. Carol McLeod says:

    I have spent years dealing with numerous different symptoms in my back and legs and seen different doctors, consultants, pain clinic and back group and never once has anyone mentioned that i might have neuropathic pain or pn. The doctor i now see is much more on the ball and i now have an appointment to see a neurologist. My legs are uneven in size(1 fat and 1 thinner) and i now have to use crutches as evey step hurts. To finally have a possible diagnosis and a doctor who cares feels good. PS i think i saw a note regarding a muscle warming ointment that can help ease the awful burning symptoms last night? did i?

  4. Acupuncture helps me in my allergies. I have hay fever ever since i was a kid..*-

  5. Su A says:

    The pain is bad enough Nsaids haven’t worked & I have arthritis to, but trying to work using voice activated tech is awful, you get funding for tech then seem to get left to it as it’s not regulated. I’m just trying to carry on a normal life as poss & employers just don’t seem to understand your trying your best. I feel no one really wants to employ someone with disabilities, if there’s a chance something gets in the way. Some days feel like a constant struggle with things that were so easy. Why is it difficult to get alterations on a listed building to be able to access the upstairs levels?

    typed on behalf of SA

  6. Donna Galek says:

    I have had an allergic reaction to anti-biotics which has left me with neuropathy. It is on the mend as the pain I suffer now does not make me cry anymore but I still get a lot of different sensations in my arms, legs, hands and feet. I have seen an Immunology Consultant and have been told to wait a couple more months before being referred to a Neurologist. Nobody really explains or is interested. I feel very alone.

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